Well, I have made up my mind.
I am opting for surgery. I was open to the idea of having another baby, but maybe my endo is too bad now...because God did not allow that to happen. Maybe it's the endometriosis, maybe it's just not a good time in our life and His plan. Either way, I have decided to stay away from medications, the violet petal study, and opt for surgery.
Now to get medical insurance and find a specialist. Easier said than done. Endometriosis specialists are HARD to find (if they are not already on the resource list that I have). I'm not completely sold, but I have found one about 40 min from where we live right now. I am hopeful, but wary that my case may be more than this doctor will want to deal with.
After much reading, pain journaling, and paying attention to every pain and pattern...I am pretty sure I have endo in my pelvis (already knew that one), diaphragm, hips, and possibly even my lungs. I did not want to have to admit it, but at least if I am wrong, I'll be happy! :)
Anyone else struggling with endo and not have insurance? After browsing some other medical issues over time, I have seen that it's a huge problem on medical message boards. I know many of them are full of ignorant advice, but I think the worst is when someone just flat out says, "Go see your doctor immediately!". Well, not all of us have the luxury of having a doctor or insurance, and the emergency room won't do anyone with endo any good! You'll get sent home with a referral to someone you cannot go to, a $500 bill for the visit, and some close to over-the-counter pain medication that won't do much other than take the edge off of your pain for an hour or two.
The search continues for me - where are you in your journey with endo?
